By Syma Sayyah, Tehran
Many of us, wherever we are, know of people, often near and dear to us, who suffer from Alzheimers. With the help of modern medicine, people all over the world live well beyond the age their parents considered usual and normal. There are some side effects; one of which is Alzheimers, where the brain stops functioning properly and memory loss follows. I was doing some research for this piece when I learnt that every seven seconds one new patient is added to number of those who suffer from Alzheimers.
Many of you may not be aware that
there is a modest foundation which cares for those who suffer from Alzheimers
I found the place clean and tidy and I met a few patients who were there. Patients can be brought to the day care center 3 times a week on even days from 9-4, although the center is open everyday. Below I share with you my observations of my recent visit to The Imam-Ali Alzheimer Charity Foundation.
This foundation was formed four years ago, when a few good hearted individuals got together and established the Imam Ali Alzheimer Charity Foundation (IAACF) with the cooperation of the local municipality which kindly offered them premises in Ekbatan, a huge housing complex on the west side of Tehran near Mehrabad airport.
The foundation has been established, and registered under reference No. 3541. IAACF was established in order to help those who suffer from Alzheimers as well as their families who care for them. The organization has members who pay an annual fee, from 22000 rials and it is very active throughout the city despite its limited means.
The center has about 700 patients
registered with them. I was told
that there are several kind volunteer ladies who visit families with Alzheimers
patients at their homes and give them help and guidance. There is also a nurse
who visits registered members at home.
The center is desperate for a special vehicle as well as to find premises
in the center of
I learn there that the average cost of medication for Alzheimers patients runs to over 2,600,000 rials per month and the full cost may run to as much as 6,500,000 rials monthly, which is a heavy burden on any family budget.
At IAACF, I was introduced to Ms Azam Haj-Yousofie who is a writer of childrens books and was in charge of public relations as well as being the editor of the center magazine titled Ghasedak – messenger - which will soon be offered at news stands for more exposure for the centers work and activities. The center has translated and published many informative pamphlets and one book on Alzheimers which can be used by carers as well as one specially done for the police on how to deal with Alzheimer patients. The center recommends bracelets with the patient’s illness and contact details which cannot easily be removed in order to save them from harm.
Ms. Haj-Yousofie informed me that
they enjoy a good working relationship with many
My observations and recommendations
What needs to done:
Their Tel/Fax is (+ 98 21) 44651122 and 44 630652 and if you wish to find out more, please visit their website www.alzheimer.ir
... Payvand News - 12/1/06 ... --